Our Mission
Bridging the Gap . . .
EMPOWERMENT, EDUCATION, AWARENESS
To empower parents, medical professionals, & local hospitals to better the lives of children with Congenital Heart Disease (CHD) through education, building awareness, enabling more expansive specialist equipment, and knowledge accessibility.
Our Core Values
- Driving change to give more life
- Connecting a community of families
- Empathy and understanding
Our Aims
- Raise awareness of CHD in children
- Provide clinical education and training within local hospitals for dealing with CHD
- Provide clinical knowledge and training – via videos, presentations, and face-to-face sessions from experts
- Educating medics to better support and communicate with parents of CHD children (speak their language)
- Build a platform of shared knowledge, trusted links, and advice for clinical professionals and cardiac families
- To provide information and support to parents of CHD children so they do not feel lonely, isolated, and unheard
- Provide CHD guidance from experts and information resources for both medics and parents from pre-birth to post-birth wellness
- Support for families following diagnosis – psychological and practical support
- A network for families – Enabling families to share their stories, experiences, thoughts and ask questions
- Try to support building and growing more resources for Children’s Acute Transport Service (CATS) and clinical teams
- Fundraising projects – e.g., equipment